June 14, 2011
Where is it, Moon?
She used her language in ways she hasn't before and added descriptive words to her sentences. She even
threw in some articles for good measure. Last week's "Mom, eat apple" very matter-of-factly became "Mom,
eat the red apple" and the 'wow' moments kept coming as the day progressed.
At one point, she searched through her closet and found a forgotten game (since she'll historically only play
the same things over and over, I was floored!) The game was missing the number Zero. She brought it to me
and said "Where is it, Zero?" We're working on replacing the "it" with a "the" but still ----- unprompted WH-
questions are like solid gold in our house.
Before she fell asleep, observing that it was still light outside, she turned to me and asked "Moon... Mom,
where is it, Moon?" wow. just wow. Monumental, coming from a girl who we once had serious doubts
would ever speak.
As I answered her, the No pain... ticker scrolled on in my head and I knew the risk was worth it. We've begun
our victory over lead and the veil that separates her world from ours is being lifted with each round of
chelation. Today is just one example of why we do biomedical treatments and how they're helping her grasp
the things her incredible therapists teach her.
At the end of the day, this weekend's round concluded with a score of Caroline 1 - Yeast 0. And rumor has it
that she's favored to take the championship.
Today was a big day at our house.
No soccer championships were won, no training wheels were taken off, but Caroline has had one of the best
days of her life.
This past weekend, with the motto "No pain, No gain" replaying through my head like a scrolling news ticker, I
took a risk and added into her supplement lineup something called DMSA. It's a heavy metal detox-er that
removes lead, which sounds great, but unfortunately -- being sulphur based, it also feeds yeast.
To people not in the biomedical inner circle, the affectionately referred to "yeast beast," is quite frankly, the
bane of our existence. It causes inattentiveness, spaciness, night waking, drunken laughter, teeth grinding,
irritability, eczema... the list goes on...
So, when you fight this particular beast on a daily basis with ~special diets~ and ~spreadsheets~ and
~prayers~ and ~seances~ (ok maybe not that last one) all centering around keeping it from rearing it's ugly
head, intentionally introducing something that feeds it is perhaps akin to feeling as if you're about to enter a
lion's den.... a lion that hasn't been fed in a long, long time.
Getting on with the story...
During Low Dose Chelation (Andy Cutler protocol) you call the weekend-long doses "rounds" and since they
require around the clock dosing, you generally begin on Friday mornings. This past Friday, (our 32nd
weekend of chelation) the term 'round' certainly took on a dual meaning.
Gloves on, we began uneventfully and she appeared to be handling the DMSA well. Nice eye contact, good
use of language, the usual "on round behaviors." However, by Friday night, the yeast beast was suiting up for
a battle. That night, Caroline was wide awake from 1-5 am.
While she danced on the bed and laughed for HOURS, I started to wish we never entered the ring. I wanted to
stop the dosing, but I knew she had lead in her body that we needed to remove, so I summoned up my nerves
and bore down.
I stopped her dancing long enough to give her the 4am dose (chelation doses are every 3 hours for 72 hours)
and finally somewhere around 5:30, she fell asleep. The alarm for the 7 am dose came at what felt like exactly
5 minutes later. Terrified I would wake her, I hesitated to give it, but I did and apparently there is a God,
because she remained peacefully asleep.
On Saturday, I pulled out the entire arsenal of yeast fighters and the rest of the weekend went on, not as awful
as expected... until Sunday night when the yeast team got it's second wind and kept her up several hours in the
On Monday morning, thankfully it was time to stop the round. We did and waited with baited breath for things to
settle and the yeast to calm down - hopefully revealing notably successful results by Tuesday.
Today is Tuesday and Hallelujah .... Caroline has amazed us all day long.
At one point, she decided, all on her own to abandon her computer games (OMG!) and stroll into her playroom.
She looked around, stopping to glance at things she usually doesn't even notice and found something that
peaked her interest (a little pony doctor set).
She sat down and played with it --- real, honest to goodness playing. She even had he pony listen to HER
heart, which, to those of you fortunate enough not to know, is way up on the ladder of play skills -- because she
actually pretended through the pony's perspective.
Aug 1, 2011 A bed is made, recovery is closer
(our most successful interventions)
Our other Andy Cutler Chelation blogs:
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